Finding a good doctor is difficult when you have a genetic connective tissue disorder. No specialty of doctor is taught how to treat connective tissue disorders in medical school. So the few doctors who understand my disease are either busy diagnosing children with it or doing research. There is one clinic near me that helps… Continue reading Finding a Good Doctor When You Have a Connective Tissue Disorder
I’d like to share with you some chronic illness-related things that I’ve found helpful over the last few months.
While I’m getting together some more chronic-illness related posts, I thought I’d go ahead and share why I love Cyrano de Bergerac, a play by Edmond Rostand. Finally, after months of waiting, my first book-related post! 😀 p.s. Please excuse the awkward rustling of pages in the background. Apparently audio recording myself is less stressful… Continue reading Why I Love the Play Cyrano de Bergerac
Finally, I have returned to explain upcoming changes to my blog & YouTube Channel (again). I know I just changed my screen name last spring but…I think I do feel more comfortable with having a “people name.” So, as of January 1st, 2018 my new blogging screen name will be Clare. I will change the… Continue reading (More) Blog & YouTube Channel Changes
Most people have never heard of connective tissue disorders (after all, they are rare diseases!), so today I’m explaining what they are, how they affect people, and how to tell if you have one. And since I have one, hopefully this will help put my other chronic illness posts into context. And if you have… Continue reading Genetic Connective Tissue Disorders 101, Part 1
Important news, everyone!! As of April 10th, 2017 my display name for this blog will no longer be The Phoenix. It will be changed to The Bookish Crafter. Why? A month ago, I decided to get a Twitter account so that I could participate in a BookTube readalong. The Phoenix turned out to be a… Continue reading New Display Name!
It has warmed up a bit where I live lately, and the family cat has started his spring shedding, so I think it’s safe to call it early spring! 😉 And since I feel like my blog needs a few “spring cleaning” changes, I thought I’d let you know what’s going on. I… Continue reading Spring Cleaning for Jelly-like Joints!
Many days, the misery from all the pain and other difficulties associated with chronic illness can be overwhelming! This TED talk by Dr. Amit Sood discusses simple habits that can help us keep things in perspective and find time to appreciate the good things that still happen in spite of the illness.