Hypermobility Basics

Genetic connective tissue disorders 101, part 2

As promised, I explain what hypermobility has to do with connective tissue disorders, and give examples of treatments that make living with a connective tissue disorder easier.

I realized after doing the audio recording that there isn’t really much to say about support groups, except that they are extremely helpful! They have a lot of resources to teach patients about connective tissue disorders. So I decided to list them below instead of talking about them in the video.

Hypermobility Basics

Finding a Good Doctor When You Have a Connective Tissue Disorder

Finding a good doctor is difficult when you have a genetic connective tissue disorder. No specialty of doctor is taught how to treat connective tissue disorders in medical school.    So the few doctors who understand my disease are either busy diagnosing children with it or doing research.  There is one clinic near me that helps… Continue reading Finding a Good Doctor When You Have a Connective Tissue Disorder

Book Review/Discussions · Uncategorized

Why I Love the Play Cyrano de Bergerac

While I’m getting together some more chronic-illness related posts, I thought I’d go ahead and share why I love Cyrano de Bergerac, a play by Edmond Rostand. Finally, after months of waiting, my first book-related post! 😀 p.s. Please excuse the awkward rustling of pages in the background.  Apparently audio recording myself is less stressful… Continue reading Why I Love the Play Cyrano de Bergerac

Hypermobility Basics

Genetic Connective Tissue Disorders 101, Part 1

Most people have never heard of connective tissue disorders (after all, they are rare diseases!), so today  I’m explaining what they are, how they affect people, and how to tell if you have one.  And since I have one, hopefully this will help put my other chronic illness posts into context.  And if you have… Continue reading Genetic Connective Tissue Disorders 101, Part 1