This time last year, I thought that if I simply made audio recordings instead of written blog posts it would take enough of the strain off of my eyes. I didn’t realize that looking at computer or phone screens at all was becoming a problem. As I have gotten more serious about getting rid of… Continue reading I guess my vision is worse than I thought
Hey guys! I actually read more than one book in the month of June, so I thought I’d do a reading wrap-up (even if it is a bit late). Mrs. Frisby and the Rats of NIMH by Robert C. O’Brien This childhood favorite was a re-read. Sometimes it’s just so relaxing to read… Continue reading June Reading Wrap-Up
As promised, I explain what hypermobility has to do with connective tissue disorders, and give examples of treatments that make living with a connective tissue disorder easier.
I realized after doing the audio recording that there isn’t really much to say about support groups, except that they are extremely helpful! They have a lot of resources to teach patients about connective tissue disorders. So I decided to list them below instead of talking about them in the video.
Finally, a post about crafting! I thought I’d just start by talking about the crafts I’ve started, and then update you on how they are going in a month or two. And hopefully at some point I can share some of the things I’ve discovered that make it easier to craft in spite of… Continue reading Spring 2018 Crafting Plans
Finding a good doctor is difficult when you have a genetic connective tissue disorder. No specialty of doctor is taught how to treat connective tissue disorders in medical school. So the few doctors who understand my disease are either busy diagnosing children with it or doing research. There is one clinic near me that helps… Continue reading Finding a Good Doctor When You Have a Connective Tissue Disorder
I’d like to share with you some chronic illness-related things that I’ve found helpful over the last few months.
While I’m getting together some more chronic-illness related posts, I thought I’d go ahead and share why I love Cyrano de Bergerac, a play by Edmond Rostand. Finally, after months of waiting, my first book-related post! 😀 p.s. Please excuse the awkward rustling of pages in the background. Apparently audio recording myself is less stressful… Continue reading Why I Love the Play Cyrano de Bergerac
Finally, I have returned to explain upcoming changes to my blog & YouTube Channel (again). I know I just changed my screen name last spring but…I think I do feel more comfortable with having a “people name.” So, as of January 1st, 2018 my new blogging screen name will be Clare. I will change the… Continue reading (More) Blog & YouTube Channel Changes
Most people have never heard of connective tissue disorders (after all, they are rare diseases!), so today I’m explaining what they are, how they affect people, and how to tell if you have one. And since I have one, hopefully this will help put my other chronic illness posts into context. And if you have… Continue reading Genetic Connective Tissue Disorders 101, Part 1
Important news, everyone!! As of April 10th, 2017 my display name for this blog will no longer be The Phoenix. It will be changed to The Bookish Crafter. Why? A month ago, I decided to get a Twitter account so that I could participate in a BookTube readalong. The Phoenix turned out to be a… Continue reading New Display Name!