Hypermobility Basics

Finding a Good Doctor When You Have a Connective Tissue Disorder

Finding a good doctor is difficult when you have a genetic connective tissue disorder. No specialty of doctor is taught how to treat connective tissue disorders in medical school.    So the few doctors who understand my disease are either busy diagnosing children with it or doing research.  There is one clinic near me that helps… Continue reading Finding a Good Doctor When You Have a Connective Tissue Disorder

Hypermobility Basics

Genetic Connective Tissue Disorders 101, Part 1

Most people have never heard of connective tissue disorders (after all, they are rare diseases!), so today  I’m explaining what they are, how they affect people, and how to tell if you have one.  And since I have one, hopefully this will help put my other chronic illness posts into context.  And if you have… Continue reading Genetic Connective Tissue Disorders 101, Part 1

Hypermobility Basics

Book Review: A Guide to Living With Hypermobility Syndrome by Isobel Knight

Here is my review of a book about living with a connective tissue disorder called A Guide to Living With Hypermobility: Bending Without Breaking, by Isobel knight. This book is covers connective tissue disorders from the perspective of patients – how they feel about it, and how it affects their lives. At the beginning of… Continue reading Book Review: A Guide to Living With Hypermobility Syndrome by Isobel Knight