So, it turns out I’ve been having more trouble with migraines from reading again. Since my jaw is better, I think making videos is better than written blogging, at least for now. If you are interested in hearing more about how I manage life with chronic illness, please subscribe to my YouTube channel, because most… Continue reading Back to Vlogging!
I’ve had a ton of smoothies lately thanks to a jaw pain flare-up. The other day out of boredom with the usual fruit flavors, I remembered that molasses exists! Here are the recipes for two of my current favorite smoothies: Molasses & Malt Smoothie Ingredients: milk (about 1 cup) malt powder (about 1 Tbsp) olive… Continue reading Two Molasses Smoothie Recipes
Winter is really challenging with a connective tissue disorder. The slipperiness of the snow and ice combines with my joint instability to make walking outside dangerous. And the coldness, indoors and outside, causes my muscles to be even more tense and painful than usual. So here are some things I have found that… Continue reading Surviving Winter with Joint Instability and/or Muscle Pain
So, when your TMJ pain starts to get better, but you’re still too sore to do a lot of chewing, what can you eat? I’ve shared what I eat at the “easy-chewing” and “medium-chewing” stages of a TMJ pain flare-up below. The really nice thing is that once you can do some chewing, it is… Continue reading Soft Foods for TMJ Pain Flare-ups: Part 2
Sometimes it’s nice to have a laugh about chronic-illness related things with people who understand. So I’m going to try posting a meme every month. Here’s the first one:
Every now and then I have a really bad flare-up of pain in my jaw joint, aka TMJ pain (the “TMJ” stands for “tempromandibular joint” which means the jaw joint). The only way to get it to calm down is to avoid chewing for awhile, and then gradually work up to foods that require a… Continue reading Soft Foods for TMJ Pain Flare-ups: Part 1
Here is my review of a book about living with a connective tissue disorder called A Guide to Living With Hypermobility: Bending Without Breaking, by Isobel knight. This book is covers connective tissue disorders from the perspective of patients – how they feel about it, and how it affects their lives. At the beginning of… Continue reading Book Review: A Guide to Living With Hypermobility Syndrome by Isobel Knight
Last weekend the Marfan Foundation‘s Marfan Conference was held at Mayo Clinic, and I’m really happy to say that I managed to get to it! I just wanted to share a bit of my experience, for anyone who is interested in going next year. The Marfan Conference is mainly about the connective tissue disorder (CTD)*… Continue reading Marfan Conference 2016